GenomeWeb – Direct-to-consumer genetic testing firms are often not completetly upfront about how they keep their customers' information confidential and private and how they might use their data in research.
Sunday Start Times - New Zealand's Law Commission will review The Criminal Investigations (Bodily Samples) Act 1995, through consultation with those who currently are using the legislation, such as police, judges and lawyers.
CNN – Cori Bargmann, the new President of the Chan Zuckerberg Science initiative, is a neuroscientist and geneticist. Her goal will be to create a "cell atlas" in which scientists from around the world mapped the genetic blueprint that creates a human being.
NPR – A scientist in Sweden has started trying to edit the DNA in healthy human embryos. The step makes him the first researcher known to attempt to modify the genes of healthy human embryos. That has long been considered taboo because of safety and ethical concerns.
STAT - Chan and Zuckerberg announced Wednesday they would commit $3 billion over the next decade to try to cure, prevent, or manage all diseases by the end of the century — an audacious goal and the latest effort by Silicon Valley philanthropists to help advance medical science.
Genomeweb - As senators on the Committee on Health, Education, Labor, & Pensions mull legislative solutions to regulate lab-developed tests (LDTs) they have to try to advance a framework that facilitates rapid access to tests while ensuring patients can rely on the results.
STAT - The run-up to Monday’s approval of a Sarepta Therapeutics drug to treat Duchenne muscular dystrophy was marked by unusual bickering inside the Food and Drug Administration, where debate over a key scientific question morphed into a formal dispute.