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Developments

The latest developments around the fields of

  • Energy
  • Genetics/Genomics
  • Nanotechnology
  • Neuroscience
  • Robotics/AI

Advancing Targeted Therapies for Rare Diseases Act of 2015 (S 2030, 114th Congress)

  • Government
  • Elected Body
  • Genetics/Genomics

Original Development Brief – Aims to allow sponsors of new drugs to reuse relevant data from previously approved drugs in their applications. Passage would expedite applications for drugs aimed to target and treat genetic diseases.

Updated last April 21, 2016
for the 09/15/2015 version of S 2030.

Aidan’s Law (S 2641/ HR 4692, 114th Congress)

  • Government
  • Elected Body
  • Genetics/Genomics

Original Development Brief – Requires state administration of newborn screening for adrenoleukodystrophy.

Updated last April 13, 2016
for the 03/03/2016 versions of S 2641 and HR 4692.

The Advancing Hope Act of 2015 (S 1878, 114th Congress)

  • Government
  • Elected Body
  • Genetics/Genomics

Original Development Brief – Extends the rare pediatric priority review voucher program and includes sickle cell disease and pediatric cancer as qualifying conditions within that program. 

Updated last March 31, 2016
for the 07/28/2015 version of S 1878.

21st Century Cures Act (HR 6, 114th Congress)

  • Government
  • Elected Body
  • Genetics/Genomics

Original Development Brief – Comprehensively addresses biomedical research and development.

Updated last September 18, 2015
for the 05/19/15 version of HR 6.

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